I love having two girls. I love having them dress up together, play 'mermaids' in the bath, have make believe picnics, it makes me happy to see them want to do everything together. Okay, not everything.
Poor Emma has been coughing and coughing and coughing. We increased her medications with the instruction of her Pulmonologist, but when she fell asleep, she was hypoxic (around 82%). So, we stuck Macie's cannula on her and although she is not a big fan, she is fairly compliant with it. She will keep it near her nose, which keeps her above 90% (the goal). With spot checks on Macie through the evening, she was actually 90% or above and acting more like herself. We used the portable tank to keep Macie on oxygen all night, and the concentrator for Emma. I think that was the last we are going to need it on Macie. I am praying Emma only needs it at night, but we'll see!
Poor Emma has been coughing and coughing and coughing. We increased her medications with the instruction of her Pulmonologist, but when she fell asleep, she was hypoxic (around 82%). So, we stuck Macie's cannula on her and although she is not a big fan, she is fairly compliant with it. She will keep it near her nose, which keeps her above 90% (the goal). With spot checks on Macie through the evening, she was actually 90% or above and acting more like herself. We used the portable tank to keep Macie on oxygen all night, and the concentrator for Emma. I think that was the last we are going to need it on Macie. I am praying Emma only needs it at night, but we'll see!This is our current medicine routine for the girls! I actually have both of the girls on one of the inhalers instead of Macie doing the nebulizer... it's just easier this way. And to top it all off, Macie has a diaper rash. The container on the far right is a miracle! It's my friend Deb's (she's a Nurse Practitioner) special butt paste - $27 for the jar, but it's worth it! Oh... the total of all these medications? $400! We have met our pharmacy copay amount!
1 comment:
your poor girls--i hope they are doing better soon! this winter has been awful--it seems like everyone and their kids and the dogs are sick!!
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